John McNicholas lived a lot of life in his 15 short years with us. He faced each day with humor, kindness, charm and enthusiasm for the things he loved: sports, music, friends and family.
It was the day John had dreamed of since he saw his first baseball game; all of the practices had paid off. He made the baseball team at St. Rita High School, and he was the starting first baseman! Who would have ever imagined that only two weeks later, he would be diagnosed with a malignant brain tumor that would rob him of everything he loved to do and ultimately take his life nine short months later.
ON THE DAY JOHN WAS DIAGNOSED…
We began our quest for useful, informative and life saving information. We scoured the internet, read every medical journal we could get our hands on and scheduled face-to-face meetings with the best and brightest doctors in the adult and pediatric brain tumor arena. The more we learned, the more we realized how little information existed specifically regarding pediatric – as opposed to adult-brain tumors.
John was as big as a man, yet providers of adult treatments wouldn’t even consider us for inclusion in any study or trial. Though at the time we were motivated to save our son’s life, after he died we realized that our quest was actually bigger than that. We made a decision to use our knowledge, connections and skills as an advocate to push for better coordination of information and the specific targeting of research money for pediatric brain tumors; we can and will get the money into the hands of the right people to maximize our chances for ﬁnding a cure and to minimize the amount of time that will take.
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